Well, every day it's new information that makes me feel like we know less and less...
Because the area in question is in my skull, they need a neurosurgeon to do the biopsy. For some reason that doc wants another MRI done so he can plan the biopsy. So, new MRI is scheduled for the 4th of September, and then I guess they'll figure out when they'll do the biopsy. I'm going to push back on my oncologist and see if there is anything he can do to move this forward more quickly, but I get the feeling the mechanisms of health care are stickier than I want them to be.
I can't tell you how much your comments here, private emails, prayers and general good thoughts to the universe help to buoy me up. THANK YOU THANK YOU THANK YOU!!!!
xoxoxo
Kerstin
I feel like storming the castle and *making* them do it. So frustrating. How on earth are you coping?
ReplyDeleteWork is crazy-busy right now, so that keeps my brain occupied. While I do have waves of weepiness, I'm trying to just stay positive and am focusing on the possibility of at some point we'll receive GOOD news... But yes, waiting two weeks just for the MRI, and then god knows how long for the actual biopsy, and then results, and then plans for next steps... yes, it's going to be somewhat difficult. We're going to Sea Ranch with John's family this weekend, which will be nice. And then I'll just keep putting one foot in front of the other. But if you coordinate a storming do let me know... ;) xoxoxoxox
Deletelove love love love love love love
ReplyDeleteRenzo just filled me in on this Kerstin. Crappy news indeed. But you and John are gonna kick its ass. Sounds like you are on the right track keeping the doctors on their toes. Keep it up.
ReplyDeleteAs a professional stormer, I think some kick-assedness is required. I can do this effectively by phone while in South Africa and then, in person when I get back.
ReplyDeleteSending you so much LOVE and SUPPORT. I'm going to come visit when I get back in two weeks.
Always thinking of you and John and sending love, strength, and prayers, cousin Kerstin. You were in Jennifer's and my thoughts, too, when we saw the Suburbs at Mn. Music on a Stick Friday night. Between you and Uncle Brian, we Hildebrandt kids were exposed to good music! Thank you. Sending big love and hugs to you! xoxoxoxo Jill, Jade, Amelia and Otto
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